Alport Syndrome Foundation - Hope, Action, Support
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Mapping the Course of Alport syndrome. If you have Alport syndrome, or know someone who does, you may want to learn about the ATHENA study now recruiting patients worldwide. The ATHENA study is designed to learn more about the progression of Alport syndrome, particularly regarding the changes in the kidneys over time in Alport syndrome patients. The ATHENA study is an observational study. And does not involve the use of any investigational drugs.
What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Is a patient-led organisation dedicated to empowering people living with Alport. To enjoy the best possible quality of life. Drawing on our continuous learning from and collaboration with individuals, families and the scientific community, this website aims to facilitate a support and information network for all those affected by Alport.
Marine Biology, Surfing and more. Riding the Waves of Climate Change. Reflections on Blogging for Science and Surfing. Blogging had made me a better writer, created new opportunities and expanded my creative directions.
Curriculum Vitae for Brick ONeil. Rose Petal Wine Murder Mysteries. Rose Petal Wine Book 3. Introduction to Simple Healthy Fresh Cookbook Series. Ultimate Simple Healthy Fresh Cookbook.
Stay up late, and help us make a difference. Monday, July 27, 2009. Thanks Again, and a Word About Sponsoring. Another successful Blogathon is over, leaving just a few administrative bits to sweep up! My thanks again to everyone who helped, in every way they helped. Your support and encouragement made a tough 24 hours fly right by! Sunday, July 26, 2009.
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Alport Syndrome Foundation
Sharon Lagas
1608 E. Briarwood Terrace
Phoenix, AZ, 85048
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Alport Syndrome Foundation - Hope, Action, SupportDESCRIPTION
The Alport Syndrome Foundation ASF is an all-volunteer-led, non-profit organization founded in 2007 by a group of families affected by the disease and guided by a Medical Advisory Committee of renowned Nephrologists.PARSED CONTENT
The site alportsyndrome.org has the following on the homepage, "What is Alport Syndrome? Hear From the Experts." I observed that the webpage also said " 5K for Healthy Kidneys a Great Success! The 5K for Healthy Kidneys." They also stated " Events in Arizona and South Dakota raised more than 47,000 for education and outreach. Thank you to all the ASF campaigners and donors. Have you seen the latest ASF newsletter? Be sure to register."SEE MORE DOMAINS
What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Is a patient-led organisation dedicated to empowering people living with Alport. To enjoy the best possible quality of life. Drawing on our continuous learning from and collaboration with individuals, families and the scientific community, this website aims to facilitate a support and information network for all those affected by Alport.
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